It is still sinking in, I am still getting used to saying "I am a thyroid cancer survivor." I am a thyroid cancer survivor.
So what is next? I have a follow up ultrasound, blood work, and an appt with my ENDO next month. Since my Tg and TgAB are undetectable, I assume the mystery tissue that was found on the right side of my thyroid bed last December will be categorized as scar tissue, but I think it will still be reassuring to know that it did not change over the last six months. Then there is my meds. I think they still need to be tweaked a bit since I have been having problems with my energy level in the afternoons for the past two months. I even feel tired driving to work some mornings. Today, my 'mental issues', as my ENDO likes to call them, were plentiful. I guess I'll have to see what my blood work reveals.
At my last ENDO appt, he said if my WBS was clean and my Tg/TgAB was undetectable, then my follow up would be annual blood work to insure my TSH and FT4 (and Total T3, if I stay on Cytomel) are at the appropriate levels, no need for another stimulated Tg/TgAB blood draw, no ultrasound. To me it sounds like not enough is going to be done to monitor me. I don't really know what the proper follow up protocol should be for HCC, but I want to make sure that my ENDO's follow up plan is similar if not the same.
I know, I need to balance out the fear at the back of my head that it can come back, at any time, with my goal of not letting cancer dictate my life. So, while I am trying to figure that all out, let me know how the neck of a thyroid cancer survivor looks.
it's looking pretty good, Flo!
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