I finally had time to catch up with my brother this past weekend. We talked a little about my second opinion appt. On the listserv and with several ThyCans from my support group, there has been a lot of talk about where the best ThyCa doctors in the US are. Several on the listserv have ended up at Mayo Clinic (Rochester) or MD Anderson (Houston), including a local ThyCan with HCC. Suzanna, one of the local group members, has been looking into going to either one of these places. Although I am happy that my ENDO seems to be doing everything right, I still want to make sure everything really is....Ok.
My second opinion ENDO did say that the first 18 months are critical, that there is a higher rate of recurrence during this time. So I feel like I have to make sure that I am completely satisfied that everything has been checked, everything. The docs at Mayo seem to find more malignant lymph nodes, etc. than anyone else. I don't even know for sure if a full (extensive, careful, etc.) neck ultrasound has been done on my neck, including the two in the past couple of months. So, I had mentioned to my brother that since my deductible and out-of-pocket max are a lot lower than last year, and I seem to be blowing through my deductible already, if I manage to blow through my out-of-pocket max before the last quarter of the year, I just might go to Mayo or MD, for good measure, see if they can find anything.
Anyway, how does my neck look?
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