My ENDO appt last Friday went well. Never got around to reporting about it this past weekend, so I'll do so now.
My FT4 is still above the range, but he lowered my Levoxyl dosage to 125mcg, and wanted to see how things were in three months. He explained that he started me at a pretty high dose (175mcg), but I seemed to have adjusted to the medication, and he was bringing it down until my levels were good. My symptoms have gotten better (yes, actually had to think about it when he asked how my hypo symptoms were). Well, I have been feeling really drained in the afternoons, but that could also be from lack of sleep and stress, so I didn't say anything. He said I may end up alternating between 125mcg and 137mcg, depending on what my labs looked like in March.
What questions did I have, he asked.....well, I had a few:
1. My second surgery report said I possibly had Hashimoto's on the right side of my thyroid. What about Tg antibodies? Should I be tested for that? He said they normally check for that when you still have a thyroid with a Tg TPO test, or something like that. As for the antibodies, he said he's been running Tg and TgAB tests with all my blood work, and they have all come back, for both, as undetectable.
It would've been nice to know, before now, that he was running both tests at the same time.
2. My papillary tumors were pretty small, but everyone I know (in my ThyCa support group) that had PC tumors also had lymph node invasion. Should I be worried about that? - No, he said, because it would've shown up on my Tg and TgAB tests that he's been doing. He suggested doing a neck ultrasound, to further prove remission. I was happy to hear that, but a little worried that he wasn't even going to do one, when I know that it is routine 6 months after thyroidectomy. So I didn't have to ask this question.
3. How important is it that my FT4 be within range as long as the TSH is where it needs to be? His range for my TSH is below 1 (or was that .1?). Since he started at a high T4 (Levoxyl) dosage for me, that's why he was still lowering it, to bring the FT4 into range.
Before I left, my ENDO mentioned that one of his associates (another Dr in the bldg) said he heard that one of his high school classmates, me, was one of his patients. I was a bit stunned as to how or why I even came up as a topic between them. Well, I don't know who's fingers I'm going to have to break now for that breech of info. First of all, my family doesn't even know the name of my ENDO. Second of all, I don't even talk to anyone from high school or that I went to college with along with the doc in question, so exactly who said something to him is beyond me, but needs a serious beating. Ok, in all honesty, I'd just wish them a really slow, painful death, unless the person who ratted me out is someone I really don't care for - then obviously a beating of some sort would be called for. I felt so violated when I heard those words come out of my ENDO's mouth because I have shared my thyroid cancer journey with only a handful of people outside of my family and really none of them knew me in high school. Well, my ENDO said not to worry because no patient privacy info was breached. I hope not because then I'd really have to find myself a new ENDO.
So, my ENDO had some pretty good news and some pretty shocking news for me last Friday.
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